March 2007 eBulletin
Carers NSW

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WHAT'S NEW

It's About Time.  Women, Men, Work and Family.  Final Paper 2007
The Human Rights and Equal Opportunity Commission (HREOC) believes that time is at the centre of the work-life balance issue.  It has proposed a new law,  the Family Responsibilities and Carers Rights Act, to give workers who have family and caring responsibilities the right to request flexible working arrangements.  The paper also discusses other measures to make society more family-friendly.  Click here to view the paper.

Inquiry by the House of Representatives Standing Committee on Family and Human Services into Balancing Work and Family
This inquiry was established to investigate the changing roles of men and women in the family and how these changes affect the work family balance.  The committee was charged with the responsibility of recommending measures to make the balance easier for families.  Of special interest to carers is Chapter 8 which deals with the care of the elderly and family members with a disability.  The observations of the committee include the comment that "Informal carers are making a considerable contribution to the Australian economy and shoulder a sizeable burden that might otherwise be placed on the Australian taxpayer." (Section 8.15)  Read more of the report.

The Senate Community Affairs Committee Inquiry into the funding and operations of the Commonwealth, State and Territories Disability Agreement (CSTDA) recently released their Final Report.  Of interest to carers are the conclusions on unmet needs in Chapter 4.  Click here and scroll to section 4.143 for an assessment by the committee of the work done by carers in Australia.  To view the submission by Carers Australia to the inquiry go to CSTDA Review Submission - Carers Australia

Mental Health Unit - Department of Families, Community Services and Indigenous Affairs (FaCSIA)
FaCSIA conducted national consultations in September 2006 and as a result will deliver additional mental health measures to increase the level of social support and community based care to people with a mental illness or intellectual disability and their families and carers.  For more details go to the FaCSIA website

CONFERENCES AND EVENTS


Telegroup Counselling (TGC) Training
Carers NSW is conducting training for professionals who would like to deliver support to carers through teleconferencing.  The training will take place over a two-day period on Tuesday 3 April and Wednesday 4 April 2007.  The registration date for applications has been extended to Friday 30 March.

Date:                     Tuesday 3 April - Wednesday 4 April 2007
Venue:                   Tuscan and Composite Rooms, Sydney Masonic Centre
Cost:                     $330 for nongovernment organisations
Details:                  flyer or call Daryn Elston-Smith on (02) 9280 4744
Registration:           form

Alzheimer's Australia 2007 Conference.  A Journey of Passion and Purpose - The Next 100 Years
Medical advances and the courage of those living with dementia have meant that many in-roads have been made into the treatment of dementia.  While recognition has been given to dementia as a National Health Priority, plans for the next 25 years are now being made by Alzheimer's Australia.  This conference is part of the process.  Carers may be particularly interested in the conference sessions on Thursday 31 May.

Date:                     Tuesday 29 May - Friday 1 June 2007
Venue:                   Perth Convention Exhibition Centre
Cost:                     $425 early bird fee for carers and people with dementia
Program details:    website

Festival of International Conferences on Caregiving, Disability, Ageing and Technology (FICCDAT)
Five related, concurrent conferences will be taking place in Toronto, Canada in June 2007.   All are focused on improving the lives of the elderly, people living with a disability and their carers.  The five conferences deal with:  Growing Older with a Disability,  Technology and Ageing,  Neurorehabilitation, Caregivers as Partners in Care and Canadian Medical and Biological Engineering.

Date:                    Saturday 16 June - Tuesday 19 June 2007
Place:                   Toronto, Canada
Program details:   website

Breast Cancer Forum April 2007
The Northern Sydney Central Coast Area Health Service is organising a forum on adjusting to life after a diagnosis of breast cancer.  Guest speakers will touch on the subjects of diagnosis, psychological impact, family communication, sexuality and treatment.  Details are available in this flyer

Date:                     Sunday 29 April 2007
Venue:                  Epping RSL Club, Rawson Street, Epping
Time:                    9.00am-3.30pm
Cost:                    $45.00 includes lunch
Contact:                Judy at Cansupport on 9926 7810

JOURNAL ARTICLES

This is a selection of articles published recently in various health and social sciences journals.   To obtain a copy of any journal article, you will need to contact your nearest library:

  • Carers: go into your nearest public library and ask about their interlibrary loans service. There will be a fee for this service. You will need to be a member of the library (membership is free).
  • Health professionals and service providers: contact your nearest university library or health/hospital library and ask if they are able to offer you an interlibrary loans service or whether they have the journal in their collection. You will need to ask about their fees. For a list of health libraries in NSW go to www.ciap.health.nsw.gov.au and enter 'libraries' in the search box.

Articles are under the subject headings listed below.  Click on the heading to view articles about each subject.  Abstracts are provided as a link under the title of each article.

Carers Generally
Carers and Paid Work
Nursing Homes and Hospitals
Carers of the Mentally Ill
Parent Carers of People with Disability
Palliative Care
Carers of those with Specific Chronic Illnesses
Young Carers

CARERS GENERALLY
Gender, ageing and the "New Social Settlement".  The importance of developing a holistic approach to care policies
Jane Lewis
Current Sociology, 2007; 55(2): 271-286
Abstract
New Options (and Risks) in Home Care for Elderly
Jane Gross
New York Times,  Published March 1 2007
Full text
Who will care for the oldest people in our ageing society?
Jean-Marie Robine, Jean-Pierre Michel and Francois R Herrmann
British Medical Journal, March 2007; 334: 570-571
Abstract
Learning from patients
Ed Beveridge
British Medical Journal Career Focus, March 2007; 334: 83-84
Full Text

CARERS AND PAID WORK
It's about time: women, men, work and family
John von Doussa
On Line Opinion  Published 14 March 2007
Full text
Why working on family matters
Mike Steketee
The Australian, 10 March 2007
Full text
The earnings of informal carers:  wage differentials and opportunity costs
Axel Heitmuellera and Kirsty Inglis
Journal of Health Economics,  In Press
Abstract

NURSING HOMES AND HOSPITALS
Caring for older people in the 21st century: `Notes from a small island`
Christine Milligan
Health & Place, September 2006; 12(3): 320-331
Abstract
Lighting for people with dementia
JM Torrington and PR Tregenza
Lighting Research and Technology, March 2007; 39(1): 81-97
Abstract

CARERS OF THE MENTALLY ILL
The Mental Capacity Act 2005:  a new framework for healthcare decision making
Carolyn Johnston and Jane Liddle
Journal of Medical Ethics, February 2007; 33: 94-97
Abstract
`You've got to take them seriously':  meeting information needs in mental healthcare
Karen Clarke, John Rooksby and Mark Rouncefield
Health Informatics Journal, March 2007; 13(1): 37-45
Abstract

PARENT CARERS OF PEOPLE WITH A DISABILITY
Consumers with an intellectual disability and carers.  Perceptions of interactions with banks
Susan C Hayes and Fiona B Martin
Journal of Intellectual Disabilities, 2007; 11(1): 9-21
Abstract
Family-Based Short Breaks (Respite) for Disabled Children:  Results from the Fourth National Survey
Helen Cramer and Jeanne Carlin
British Journal of Social Work, Published online February 7 2007
Abstract
An exploration of the support received by people with intellectual disabilities who have been bereaved
U Gilrane-McGarry and L Taggart
Journal of Research in Nursing, March 2007; 12(2): 129-144
Abstract
Caring for a child with Juvenile Huntington's Disease:  helpful and unhelpful support
Helen M Brewer, Jonathan A Smith, Virginia Eatough, Cath A Stanley, Neil W Glendinning and Oliver WJ Quarrell
Journal of Child Health Care, March 2007; 11(1): 40-52
Abstract

PALLIATIVE CARE
Home-based palliative care in Sydney, Australia:  the carer's perspective on the provision of informal care
S Zapart, P Kenny, J Hall, B Servis and S Wiley
Health & Social Care in the Community, March 1 2007; 15(2): 97-107
Abstract
Key challenges and ways forward in researching the "good death":  qualitative in-depth interview and focus group study
Marilyn Kendall, Fiona Harris, Kirsty Boyd, Aziz Sheikh, Scott A Murray, Duncan Brown, Ian Mallinson, Nora Kearney and Allison Worth
British Medical Journal, March 2007; 334: 521
Full text
Reducing emotional distress in people caring for patients receiving specialist palliative care.  Randomised trial
Kiri Wlash, Louise Jones, Adrian Tookman, Christina Mason, Joanne McLoughlin, Robert Blizard and Michael King
British Journal of Psychiatry, 2007; 190: 142-147
Abstract

CARERS OF THOSE WITH SPECIFIC CHRONIC ILLNESSES
'Fighting for everything':  service experiences of people severely affected by multiple sclerosis
Polly Edmonds, Bella Vivat, Rachel Burman, Eli Silber and Irene J Higginson
Multiple Sclerosis, February 9 2007  In Press
Abstract
Information needs of the informal carers of women treated for breast cancer
K Beaver and G Witham
European Journal of Oncology Nursing, February 1 2007; 11(1): 16-25
Abstract
Patient, carer and staff experience of a hospital-based stroke service
Reg Morris, Olivia Payne and Anna Lambert
International Journal for Quality in Health Care,  Published online February 2 2007
Abstract
Family carers in stroke care:  examining the relationship between problem-solving, depression and general health.
S Yeung, MH Lui, F Ross and T Murrells
Journal of Clinical Nursing, February 1 2007; 16(2): 344-52
Abstract
Stress in caregivers of aphasic stroke patients:  a randomized controlled trial
Brian Draper, Greg Bowring, Claire Thompson, Jocelyn Van Heyst, Philip Conroy and Julie Thompson
Clinical Rehabilitation, February 2007; 21(2): 122-130
Abstract
Person-centred dementia services are feasible, but can they be sustained?
JRF Gladman, RG Jones, K Radford, E Walker, and I Rothera
Age and Ageing, March 2007; 36(2): 171-176
Abstract

YOUNG CARERS
Global Perspectives on Children's Unpaid Caregiving in the Family.  Research and Policy on 'Young Carers' in the UK, Australia, the USA and Sub-Saharan Africa
Saul Becker
Global Social Policy, April 2007; 7(1): 23-50
Abstract

WEBSITES

WorkChoices Legislation and Carers

The Federal Government's WorkChoices legislation is now a year old.  Carers may find that in order to negotiate favourable working conditions they will need to learn more about the art of negotiation.  The Working Carers website www.workingcarers.org.au could help carers understand their entitlements and how to go about getting the best deal at work.   Go to the Fact Sheet link Negotiating with your employer 

Carers Australia
Carers Australia has made a number of submissions and published papers of interest to carers in recent months.  Advocacy efforts on behalf of carers can be viewed at the Carers Australia website www.carersaustralia.com.au

Young Carers Website
Young Carers are aged 25 years and under and care for a relative or friend with a long-term disability, mental illness or drug and alcohol dependence. It is estimated that there are around 347,700 (Australian Bureau of Statistics, 2003) young carers in Australia.  Carers NSW provides an interactive website for young carers that gives information about emotional and practical support such as respite and counselling, a chat discussion board and other useful website links.  Staff at Carers NSW are currently asking young carers to send stories and poems through the website to be published.  Entries close Monday 2 April.   See this flyer for details.
Go to www.youngcarersnsw.asn.au to see more.

RESEARCH

Balancing Work and Family in California
In July 2004 California became the first state in the USA to offer paid family leave benefits to workers who wanted to care for a new baby or for other family members in need.  Balancing Work and Family by Rona Levine Sherriff of the California Senate Office of Research examines how wage earners in California have made use of the new law.  The data presented in the report looks at the trends and the possible gaps in the Paid Family Leave Program's coverage.  Read the Executive Summary here.  On February 23 this year, a new bill (S.B. 727) was introduced in California which would expand eligibility for the Paid Family Leave law to include workers who provide care for a seriously ill grandparent, grandchild, parent-in-law or sibling.