June 2006 eBulletin
Carers NSW

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CONFERENCE

Partnerships for Better Health Outcomes:  Carers and professionals working together
Carers NSW is organising a conference in March 2007 for professionals who work in health and community care.  The conference will focus on supporting carers; carer recognition and participation; and the benefits of working with carers.  There will be a call for papers from July and  registration will take place from November 2006.  
When:        Thursday 8 and Friday 9 March 2007
Where:       Dockside, Cockle Bay, Sydney
Details:      Home page  www.carersnsw.asn.au  under "Health Conference 2007"
Contact:     conference@carersnsw.asn.au
              
    02 9280 4744

WHAT'S NEW

New Statistics about carers' use of the Carer Resource Centre
This information gives a picture of how many carers within the Home and Community Care Regions of NSW contacted Carers NSW over the past few months for support, information and/or counselling.  Click here to see the statistics.  To view this information on our website, search under the heading 'about carers' and follow the statistics links.

New Developments at Carers NSW
Carers NSW works constantly to improve the lot of carers.  For information about new developments in the work being done at Carers, go to our website and click 'Research, Policy and Advocacy'. Note the review of the Carers Statement which will be achieved by consulting with stakeholders via a discussion paper;  research into the need for a Carers Card to give financial assistance and social support to carers; and support for former carers.

NSW Budget Highlights for Carers 2006-07
Carers NSW made a submission to the NSW government proposing that the budget provide additional spending in the following areas: Carers' Programs, Home and Community Care, Disability Services and Respite, Mental Health Programs and a commitment by the government to fund the implementation of a Carer Policy across all government departments. To see this submission, and the government's reponse in the budget, go to Carers NSW website homepage.

 NSW Government Funding for Disability Services
The NSW Government has launched Stronger Together: A new direction for disability services in NSW 2006-2016 to deliver better services for people with a disability and their families. The plan follows extensive state-wide consultation, in which Carers NSW played a part, and provides an additional $1 billion funding over the first five years. See the Department of Ageing, Disability and Home Care website

Carers NSW Response to the NSW Government's Disability Services Announcement 
For the Carers NSW Response to this announcement visit our website and go to 'Media Releases'.  

Commonwealth Budget 2006-2007
As in the past two Commonwealth Budgets, an additional $1,000 will be paid this financial year to over 100,000 people eligible for the Carer Payment.  Those receiving Carer Allowance will receive $600 to assist them in their caring role.  Read the Treasurer's speech here and scroll to the heading 'Supporting Older Australians and Carers'.

Carers Australia's Response to the Budget
For the Carers Australia analysis and reply to the Commonwealth Budget 2006-2007 see this Media Release


JOURNAL ARTICLES

This is a selection of articles published recently in various health and social sciences journals. Abstracts are provided as a link under the title of each article.  To obtain a copy of any journal article, you will need to contact your nearest library:

 

  • Carers: go into your nearest public library and ask about their interlibrary loans service. There will be a fee for this service. You will need to be a member of the library (membership is free).

  • Health professionals and service providers: contact your nearest university library or health/hospital library and ask if they are able to offer you an interlibrary loans service or whether they have the journal in their collection. You will need to ask about their fees. For a list of health libraries in NSW go to www.ciap.health.nsw.gov.au and enter "libraries" in the search box.

Articles are under the subject headings listed below.  Click on the heading to view articles about each subject.

Carers Generally
Nursing Homes and Hospitals
Carers of the Mentally Ill
Parent Carers of Children with Disabilities
Palliative Care
Carers of those with Specific Chronic Illnesses

CARERS GENERALLY
Informal care at times of change in health and mobility: a qualitative study
Rachael Gooberman-Hill and Shah Ebrahim
Age and Ageing, May 2006; 35: 261 - 266.
Abtract

What Can We Expect from Paid Carers?
Gabrielle Meagher
Politics & Society, Mar 2006; 34: 33 - 54.
Abstract

Constructing a Morality of Caring: Codes and Values in Australian Carer Discourse.
S Winch
Nursing Ethics, January 1, 2006; 13(1): 5-16.
Abstract

NURSING HOMES AND HOSPITALS:
Dementia and Residential Placement: A View from the Carers’ Perspective
Bruno Chene
Qualitative Social Work, Jun 2006; 5: 187 - 215.
Abstract

Perspectives of Carers on the Move From a Hospital to a Transitional Care Unit
Darren Daff, Jacqueline M. Stepien, Rachel Wundke, Jan Paterson, Craig H. Whitehead, and Maria Crotty
Qualitative Health Research, Feb 2006; 16: 189 - 205.
Abstract

Caregivers' Reasons for Nursing Home Placement: Clues for Improving Discussions With Families Prior to the Transition
Gwendolen T. Buhr, Maragatha Kuchibhatla, and Elizabeth C. Clipp
The Gerontologist, Feb 2006; 46: 52 - 61.
Abstract

CARERS OF THE MENTALLY ILL
Meeting the Mental and Physical Healthcare Needs of Carers
Irene Cormac and Peter Tihanyi
Advances in Psychiatric Treatment, May 2006; 12: 162 - 172.
Abstract

Religiosity, Psychosocial Adjustment, and Subjective Burden of Persons Who Care for Those With Mental Illness
Aaron B. Murray-Swank, Alicia Lucksted, Deborah R. Medoff, Ye Yang, Karen Wohlheiter, and Lisa B. Dixon
Psychiatric Services, Mar 2006; 57: 361 - 365.
Abstract

PARENT CARERS OF CHILDREN WITH DISABILITIES
Parental Schemata in the Management of Children With Attention Deficit–Hyperactivity Disorder
Colin Bull and Thomas Whelan
Qualitative Health Research, May 2006; 16: 664 - 678
Abstract

Holiday Breaks for Adults with Intellectual Disabilities Living with Older Carers
Roy McConkey and Joanne McCullough
Journal of Social Work, Apr 2006; 6: 65 - 79.
Abstract

PALLIATIVE CARE
The Meaning of Being Supportive for Family Caregivers as Narrated by Registered Nurses Working in Palliative Homecare
Peter Stoltz, Maud Lindholm, Giggi Udén, and Ania Willman
Nursing Science Quarterly, Apr 2006; 19: 163 - 173.
Abstract

The Influence of Patient and Carer Age in Access to Palliative Care Services
Gunn E. Grande, Morag C. Farquhar, Stephen I. G. Barclay, and Chris J. Todd
Age and Ageing, May 2006; 35: 267 - 273.
Abstract

CARERS OF THOSE WITH SPECIFIC CHRONIC ILLNESSES
Avoidant Coping Partially Mediates the Relationship Between Patient Problem Behaviors and Depressive Symptoms in Spousal Alzheimer Caregivers
Brent T. Mausbach, Kirstin Aschbacher, Thomas L. Patterson, Sonia Ancoli-Israel, Roland von Känel, Paul J. Mills, Joel E. Dimsdale, and Igor Grant
American Journal of Geriatric Psychiatry, Apr 2006; 14: 299 - 306.
Abstract

The experience of burden in India: A study of dementia caregivers
Leena Mary Emmatty, Ranbir S. Bhatti, and Mathew T. Mukalel
Dementia, May 2006; 5: 223 - 232.
Abstract

Ethnicity, Stress, and Cortisol Function in Hispanic and Non-Hispanic White Women: A Preliminary Study of Family Dementia Caregivers and Noncaregivers
Dolores Gallagher-Thompson, Gia Robinson Shurgot, Kenneth Rider, Heather L. Gray, Christine L. McKibbin, Helena C. Kraemer, Sandra E. Sephton, and Larry W. Thompson
American Journal of Geriatric Psychiatry, Apr 2006; 14: 334 - 342.
Abstract

EVENTS

Resilience! A Practitioner's Guide to Achieving Balance, Confidence, Stress Hardiness and Mental Health 
is a one-day presentation by Sam Goldstein (University of Utah School of Medicine) on positive psychology.  People may have suffered because well-meaning professionals and managers spend time and energy fixing "what is wrong".  Sometimes circumstances or personalities can't be "fixed". Sam Goldstein advocates for positive psychology in helping others. In these workshops he teaches practitioners to encourage their clients to build their assets by using the Ten Keys to Resilient Living.  The workshop is taking place in Sydney on Saturday 22nd July.  For more information and registration details visit this website


WEBSITES

CareSearch  
The CareSearch website is the result of a project funded by the Australian Government to improve the reseach material available to palliative care clinical practitioners, researchers and educators nationally.  It includes abstracts from scientific meetings; government reports; theses and treatises from Australian universities and journal articles not found in medical databases.  The project team is within the Department of Palliative and Supportive Services at Flinders University, Adelaide.
http://www.caresearch.com.au/home/Default.aspx

Living, Caring, Working
This website is for those living with a life threatening illness, their carers and work colleagues. It has been developed by Palliative Care Australia, the peak national body representing the interests of people living with a life-threatening illness.
http://www.livingcaringworking.com/

HealthInsite
HealthInsite, a Commonwealth Government initiative, provides information on conditions and diseases; health and wellbeing; life stages and events and health services.  Some assistance with languages other than English is provided.
http://www.healthinsite.gov.au

Bipolar Disorder Web-based educational program
The Black Dog Institute, a Sydney-based organisation dedicated to the improved understanding of depression, has produced an education program that explains Bipolar Disorder. Australian experts talk about diagnosis, causes, treatments, stay well plans and more. The program includes question and answer sessions and first-hand accounts from people living with the illness.
http://www.blackdoginstitute.org.au

RESEARCH

Developing a model of participatory research involving researchers, practitioners, older people and their family carers: An international collaboration
Elizabeth Hanson, Lennart Magnusson, Janet Nolan, and Mike Nolan
Journal of Research in Nursing, Jul 2006; 11: 325 - 342.
The care of frail older people and their family carers present significant challenges for welfare systems throughout the world.  Several authors identify tensions between movements such as evidence-based practice and initiatives designed to increase the active participation of service users [carers] suggesting that there is a need for a new approach to research that reconciles potentially conflicting goals. This paper describes the evolution of a model of participatory research resulting from a collaboration between Sweden and the United Kingdom, which actively involved older people, family carers, service providers and voluntary organisations.
Abstract