New Year eBulletin
Carers NSW

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Carers NSW wishes everybody a Happy New Year


CONFERENCES AND SEMINARS

Carers NSW Health Conference:  "Partnerships for Better Health Outcomes. Carers and professionals working together"
Carers NSW is organising a conference in March 2007 for professionals who work in health and community care.  The conference will focus on supporting carers; carer recognition and participation; and the benefits of working with carers. Those wishing to attend should visit www.carersnsw.asn.au and follow the links under "Health Conference 2007".

When:        Thursday 8 and Friday 9 March 2007
Where:       Dockside, Cockle Bay, Sydney
Contact:     conference@carersnsw.asn.au
              
    02 9280 4744

The Down Syndrome Association of NSW:  "All the Way Project.  Seminar Program for Family Carers January - June 2007"
This seminar program provides information and support for family carers of adolescents and adults with Down Syndrome.  The seminars take place in metropolitan as well as regional areas.  Sessions in Vietnamese, Chinese and Arabic are yet to be confirmed.  See this brochure for the workshop program.
                       

WHAT'S NEW

Taskforce on Care Costs
On 18 October 2006 the Taskforce released its long awaited report.  The enquiry was set up to inform the Federal Government about Australians in paid work who care for their children, elderly parents or a friend or relative living with a disability. With this information, better planning can be made to include carers in the workplace.  The investigation uses economic modelling and a national survey of 1000 Australians with caring responsibilities to make recommendations that can be read at this website.

The Brain Injury Association
A new carer support group has been established for carers of those affected by brain injury in the Illawarra region.

Where:  
Headway, 4 Mercury Street, Wollongong
When:   
First Tuesday of every month between 10.00am and12.00pm
Contact:
Jacob Joseph
               Community Development Coordinator
               Brain Injury Association of NSW
               jacobj@biansw.org.au or phone 1800 802 840

For more information about brain injury support visit www.biansw.org.au

JOURNAL ARTICLES

This is a selection of articles published recently in various health and social sciences journals. Abstracts are provided as a link under the title of each article.  To obtain a copy of any journal article, you will need to contact your nearest library:

 

  • Carers: go into your nearest public library and ask about their interlibrary loans service. There will be a fee for this service. You will need to be a member of the library (membership is free).

  • Health professionals and service providers: contact your nearest university library or health/hospital library and ask if they are able to offer you an interlibrary loans service or whether they have the journal in their collection. You will need to ask about their fees. For a list of health libraries in NSW go to www.ciap.health.nsw.gov.au and enter 'libraries' in the search box.

Articles are under the subject headings listed below.  Click on the heading to view articles about each subject.

Carers Generally
Nursing Homes and Hospitals
Carers of the Mentally Ill
Parent Carers of Children with Disabilities
Palliative Care
Carers of those with Specific Chronic Illnesses

CARERS GENERALLY
The work of elderly men caregivers. From public careers to an unseen world
Richard Russell
Men and Masculinities, 2007; 9(3): 298-314
Abstract

Relations between social support, appraisal and coping and both positive and negative outcomes in young carers
Kenneth I Pakenham, Jessica Chiu, Samantha Bursnall and Toni Cannon
Journal of Health Psychology, 2007; 12 (1): 89-102
Abstract

The experience of caring for someone over 75 years of age: results from a Scottish general practice population.
A Jarvis, A Worth, and M Porter
Journal of Clinical Nursing, November 1, 2006; 15(11): 1450-9
Abstract

Abuse of elderly men and women among clients of a community psychogeriatric service
Gail Wilson
British Journal of Social Work; 24(6): 681-700
Abstract

Call us carers: Limitations and risks in campaigning for recognition and exclusivity
Liz Lloyd
Critical Social Policy, 2006; 26(4): 945-960
Abstract

NURSING HOMES AND HOSPITALS
A multi-centre randomized control group trial on the use of art therapy for older people with dementia
Jennifer Rusted, Linda Sheppard and Diane Waller
Group Analysis, 2006; 39(4): 517-536
Abstract

CARERS OF THE MENTALLY ILL
A suggested push model for interpreting the dilemmas of institutional care, community care and family care of mental-health consumers
Kam-shing Yip
International Social Work, 2006; 49(6): 805-817
Abstract

Third time lucky?
Clare Dyer
British Medical Journal, 25 November 2006; 333: 1090
Abstract

Best practice when service users do not consent to sharing information with carers
Mike Slade, Vanessa Pinfold, Joan Rapaport, Sophie Bellringer, Sube Banerjee, Elizabeth Kuipers and Peter Huxley
The British Journal of Psychiatry, 2007; 190: 148-155
Abstract

PARENT CARERS OF CHILDREN WITH DISABILITIES
Older carers of adults with a learning disability confront the future: Issues and preferences in planning
Laura Bowey and Alex McGlaughlin
British Journal of Social Work, 2007; 37 (1): 39-54
Abstract

The experience of health and wellness in mothers of young children with intellectual disabilities
Sandra Mackey, Linda D. Goddard
Journal of Intellectual Disabilities, 2006; 10( 4): 305-315
Abstract

Parents’ experience of having a child with autism and learning disabilities living in a group home
Ylva Benderix, Berit Nordström, Bengt Sivberg
Autism, 2006; 10(6): 629-641
Abstract

PALLIATIVE CARE
A retrospective review of place of death of palliative care patients in regional north Queensland
A Howat, C Veitch and W Cairns
Palliative Medicine, 2007; 21(1): 41-47
Abstract

Terminally-ill people living alone without a caregiver: an Australian national scoping study of palliative care needs
S Aoun, L J Kristjanson, D Currow, K Skett, L Oldham and P Yates
Palliative Medicine, 2007; 21(1): 29-34
Abstract

What people close to death say about euthanasia and assisted suicide: a qualitative study
A Chapple, S Ziebland, A McPherson and A Herxheimer
Journal of Medical Ethics, 2006; 32: 706-710
Abstract

CARERS OF THOSE WITH SPECIFIC CHRONIC ILLNESSES
How can occupational therapy improve the daily performance and communication of an older patient with dementia and his primary caregiver? A case study
Maud J L Graff, Myrra J M Vernooij-Dassen, Jana Zajec, Marcel G M Olde-Rikkert, Willibrord H L Hoefnagels and Joost Dekker 
Dementia, 2006; 5(4): 503-532
Abstract

Supportive care needs of people with brain tumours and their carers
M Janda, E G Eakin, L Bailey, D Walker, and K Troy
Support Care Cancer, November 1, 2006; 14(11): 1094-103.
Abstract

Stress and depression in family carers following traumatic brain injury: the influence of beliefs about difficult behaviours
Gerard A Riley
Clinical Rehabilitation, 2007; 21(1): 82-88
Abstract

WEBSITES

The Rural Health Education Foundation
provides television-based health education for doctors, pharmacists, nurses and allied health professionals in an effort to reduce professional isolation in rural areas.   Broadcasts take place via the Foundation's satellite network or on their website www.rhef.com.au.  At 8.00pm Tuesday 27 February a programme entitled "Dementia: Carers and Families" will be broadcast.  For details click here

Change Champions organises seminars throughout 2007 for health professionals on a range of clinical management issues.  Some of the issues looked at include palliative care, ethics in medical decision making and the improved management of patients living with a disability.  For a list of seminars in the first half of 2007 go to www.changechampions.com.au

Aged Care Australia. The Department of Health and Aging has launched a new website to help older people and their carers to find the information that they need.  Search for information on staying in your own home, residential care, looking after yourself as a carer and other health issues
Go to www.agedcareaustralia.gov.au 

RESEARCH

The Sandwich Generation: women caring for parents and children
The Bureau of Labour Statistics in the United States has recently collated data from the National Longitudinal Surveys of Young Women (NLSW) in the USA.  The survey includes women who were aged between 14 and 24 when first interviewed in 1968.  The Sandwich Generation is a term used to describe this now middle-aged generation who have elderly parents and dependent children.  Data extracted from the survey relating to this group of women can be found at the Bureau of Labour Statistics.  Click 'Advance Search' and type the term 'sandwich generation'.

While in Canada ....
In 2002 over one million employed people aged 45 to 64 provided informal care to seniors with long-term conditions and disabilities. While the majority of low-intensity caregivers felt few or no socio-economic consequences, when higher degrees of caregiving and employment were combined two thirds of women experienced substantial employment-related consequences.  The full report is from Statistics Canada, entitled Balancing Career and Care, by Wendy Pyper in the journal Perspectives on Labour and Income (Catalogue no. 75-001-XIE);  2006, 7 (11): 5-15.